Fibromyaglia, you can’t control me. #Spoonie #Fibro

Fibromyaglia, you can't control me. #Spoonie #Fibro 1

The other day I was told something that has stuck in my head and rang true. “Let people say whatever they want because in the end, they aren’t the ones that are living.”

Sometimes we are forced to cut ties. When my fibromyalgia issues started, I knew it would be no walk in the park. What I didn’t realize was fibroawarenesshow much hate and judgement people would sling. Fibromyalgia pain is REAL. Fibromyalgia has become a blanket diagnosis in which medical providers often blame anything a person is experiencing on fibromyalgia. When it comes to a person’s health, that’s not right and our health care systems need to change. Telling people to suck it up when they are fighting isn’t helpful.

I’ve realized that even though I feel like giving up, in all reality that’s the exact last thing I’m doing. I am a fighter. Even when the world becomes hell, I’m still doing what I need to do for my family. While I can not do alot of things I used to, I still find ways to provide what I can. The only problem is I wear my heart on my sleeve and people manipulate such. I’ve trusted some too easily and it’s time for that to stop.

As I write this, I don’t feel anger, I don’t feel sadness. I actually feel peace. Peace in knowing that what I say is true and that I don’t have to be afraid of walking on eggshells or doing something to make a “Friend” talk poorly about me or turn their back on me.

Quality over quantity is more important than anything. Sometimes when all you need is a hug, you realize things. You should never have to worry of what a person is saying about you, that’s not friendship.

My fibromyalgia has destroyed alot of things in my life but it hasn’t destroyed my will. My will to provide for my children through my writing, my will to keep going to doctors even though I feel as if I won’t be listened to. Fibromyalgia will never destroy the love for my children and my family.

Sometimes we have to find the support we need in the least expected spot but never give up on yourself and who you are. One day, there will be something that controls fibro and we won’t feel the need to be in a constant battle.

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  1. Great post! I know exactly what you are talking about. I have been battling Fibro for about 6 years now. I hate when people say things like “It’s all in your head.” I want to scream, Yes it is! My brain sends pain signals at an amplified level! People would never say things like that to someone who had cancer or MS or any other health issue.
    Hang in there!

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