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Trigger Points and All

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I know I have been naughty in not updating about my Center for Pain Medicine appointment but I haven’t been sure to explain how it went and what it was. I was scared. I figured we’d have a huge wait. Luckily, the nurse was calling me back into a room before I was even done […]

Sinus Infections and Knicked Nerves OH MY!

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I realize I have not posted lately about the fibromyalgia and headaches. I’m still pretty much playing the waiting game to see. With the Sinus CT showing significant abnormalities, I really don’t know what it means and won’t until I see an ENT in two weeks. The only problem with that is-I have another sinus […]

CT Results are in….

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I just now was called by my doctor regarding my CT. He told me that I did not have a sinus infection but I had significant abnormalities in the sinuses. Uh, what on earth does that mean? So, now I have to wait for another referral to an ENT. Hey, we might have an answer […]

Another CT Scan on the Way…

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Yes, another doctor’s appt. today. I pretty much layed out that I am fed up and I can not take the “wait and see” game anymore. Tomorrow, I am having ANOTHER CT Scan. This time? Focusing on my face and sinuses. He confirmed a deviated septum and wants to see what films show and if […]

Too Young for Pain Meds?

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I have seen specialists and new doctors over and over again since dealing with headaches and pain. I’ve been injected I don’t even know how many times. My hips are starting to have solid lumps from almost daily/every other day. I’ve been on Vicodin once while Toradol started to no longer work (yet they still […]

Back to Head Ready to Explode Pain

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I am worn out. The past two times in ER, my blood pressure is back to elevated which might explain why this pain just will not go away. The pain is at my temples and throbbing. My eyes are watering. I’m dizzy and of course now, the pain is trying to creep into my hands. […]

How Much More

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With enough injections to make my hips look like this, I don’t think I have a choice in getting over my fear of needles. (AND TATTOO NEEDLES FEEL WAY DIFFERENT THAN INJECTIONS!) My body is worn out. How much more does it have to take? This only takes away the “pain” for a temporary time […]

When a Med Runs out

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When I was prescribed a new muscle relaxer, Skelaxin, I was pumped for something that sounded like it would actually start to help.  But of course, when it came time to get it from the pharmacy- “It will need a prior authorization”. Go figure right? I mean they’ve  denied Midrin for my headaches and an […]

Staying Positive Through It All

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While things can be tough dealing with something like fibromyalgia, I’ve had to remind myself to find joy and stay positive in where I can. I’ve always joked with doctors and nurses while I’m in pain saying, “No one can take away my sarcasm” and they most definitely agree with me. I make jokes while I’m […]

When Those Around You Don’t Support

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Trying to understand a disease that very little is known about is hard enough. I often hear “feel better” or “get well soon” when it comes to me having a headache or expressing how bad my back hurts. The thing is, I never will “get better”. There is no cure. It’s like telling someone with […]

Yawn, yawn, yawn

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Over the course of the past few weeks, we’ve gone to trying new meds. Well, I’d love to know how long it takes to get “used” to these meds. My day consists of Skelexin Celexa Clorazapam (I am told this helps to relax muscles) Proponolol Loratadine Cryselle Now you go why the heck are you […]

So what’s next.

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Last week when I followed up with my doctor after the crap Mary Greeley put me through, she decided to try some trigger point injections where she is allowed to. While it helped for that specific area, I think I became more aware of how much my neck and shoulders truly spasm. After talking a […]

What Did I do to deserve this?

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Yesterday, after dealing with Mary Greeley and my neurology nurse calling over, we were told I would be seen after they received dictation from my neurologist. This morning I was called by the “Director” of Pain Medicine Clinic. He just called me again after doing some investigating and told me I would not be seen. […]

Mary Greeley, More Horrible Treatment.

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I have been attempting to be seen by Pain Medicine Clinic at Mary Greeley for trigger point injections for my neck. First I was told I had to go to neurology, second I was told I needed an MRI. Now? “We won’t see fibromyalgia patients”. Really? Then why is this on their website Mary Greeley […]

A Week of More Doctors

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This morning I have another doctors appointment with-NEUROLOGY. Why? Because I was told it was needed for me to get a referral to Pain Medicine (apparently my former primary care likes to write interesting referrals). I do not like this neurologist. I will likely sit there for an hour before I am called back into […]