While Fibromyalgia impacts between 3 and 6 million Americans, there still is too much “unknown”. You can’t say “I have fibromyalgia.” like someone might say “I have asthma.”
People just don’t get it.
Fibromyalgia pain is real. At one point in time, fibromyalgia was a diagnosis given to anyone with chronic pain that could not be explained. With new research, it is now known that people who suffer from fibromyalgia experience real pain, with associated changes in brain chemistry that may cause overstimulation of nerves or hypersensitivity to pain stimuli. Research has led to the acceptance of fibromyalgia as a legitimate condition with identifiable symptoms, and the search for treatments that can improve the lives of people living with fibromyalgia is underway.
“You always cancel last minute.”
“You ALWAYS have a headache.”
Trust me, I’d much rather be the person that was ALWAYS on the go and running circles around people. I still have fun and get out and about but I just can’t do things in “overload”. I do always say, I’ll deal with my pain when my kids are in bed.
I have very few people in my personal life that I see everyday that understand fibromyalgia. They are instead, frustrated, with my “abilities”.
In a quest to find answers, and those that understand, I took to facebook. Here are just some of the pages I found that are supportive of those with fibromyalgia and other chronic pain “Invisible disease”.
Facebook Support Pages for those with Fibromyalgia
- People with Fibromyalgia
- Fibro Mommies
- Frustration with Fibromyalgia
- Fibro Friends
- Fibro Faces
- What is it like to live w/Fibromyalgia & Chronic Pain/Fatigue?
- Fibromyalgia Network
- American Fibromyalgia Syndrome Association
- Fibromyalgia Family and Spouse Support
- Fed Up with Fibromyalgia
These are truly just a handful of pages that I have checked out and know I can look to for stories of those that can understand and support.
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