Tomorrow afternoon, we will be heading back to the Orthotics. I really can’t put my emotions into words right now but I am overwhelmed to say the least. We are preparing for a rough week as he adjusts to having to wear the cranial band/helmet. I’m worried as all my children have very sensitive skin and I’ve heard of children getting pressure sores from wearing the band. I even have thought ahead to when it gets really cold, how will I put a winter hat on his head?
I’m scared for how people will respond when we are in public. I am usually very reserved when people are rude (Hey, I’m covered in tattoos, I’m used to stares but this is my child). Our physical therapist has told me of another family she’s working with telling her of people “Did he fall? Was he dropped? What’s wrong with him?” and I don’t know how I would respond to such. I’ve seen some cute sayings in decals to decorate a cranial band but with the amount of travel we’ll be covering, it’s not the first thing on my mind, even if I’d love it.
Lucas is not even a year old but he and his brother have been through so much. I call Lucas my tough guy from how much he has gone through and yet still smiles. As Nathan begins physical therapy and prepares for a possible cranial band as well for a less severe case, I sit thinking about all that has happened. Inside, it hurts though and I question if there is something I could have done to make this different.
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